Draft:CompCure
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CompCure
- CompCure is a Danish non-profit association focused on the rare complement-mediated kidney diseases C3 glomerulopathy (C3G) and immune complex membranoproliferative glomerulonephritis (IC-MPGN).[1]
History
The organisation was founded by the parents of a child diagnosed with IC-MPGN.[1]
Activities
CompCure works to increase knowledge and awareness of C3G and IC-MPGN, including improving diagnosis, supporting research, contributing to the development of patient registries, promoting the use of clinical guidelines, and supporting the development of new therapies.[1]
The organisation collaborates with patients, healthcare professionals, industry partners, and other stakeholders.[1]
Collaboration with ERKNet
CompCure contributes to a subregistry within the European Rare Kidney Disease Reference Network (ERKNet), one of 24 European Reference Networks supported by the European Union.[2][3]
ERKNet comprises more than 100 specialised centres across 24 countries.[4]
The network has established the European Rare Kidney Registry (ERKReg), which includes data from more than 70,000 patients with rare kidney diseases.[5]
References
- ^ a b c d "About CompCure". CompCure. Retrieved 25 March 2026.
- ^ "European Reference Networks". European Commission. Retrieved 25 March 2026.
- ^ "ERKNet – European Rare Kidney Disease Reference Network". ERKNet. Retrieved 25 March 2026.
- ^ "About ERKNet". ERKNet. Retrieved 25 March 2026.
- ^ "ERKReg Registry". ERKReg. Retrieved 25 March 2026.
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